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- Japan’s Abe to meet Iran’s president to discuss easing tension in region
- Downing of US spy drone shattered war threats against Iran: Top IRGC commander
- IAEO head reports development of first ion-therapy hospital in west of Asia
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- Crew fixing Iran oil tanker broken down in Red Sea
- As Iranians hold nerves, US seeks to scare off trade
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- Iran FM warns US against ‘serious miscalculation’ in Persian Gulf
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- Iran in reverse brain drain as top students come home in rising numbers
- Iran official calls for compensation for tanker seizure
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- Shia Muslims celebrate Eid Al-Ghadir
- North Korea praises Iran’s anti-US struggle
- Zarif says to meet French president Friday
- Iranian court hearing case of UK oil tanker
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- Finland backs INSTEX in defiance of US
- US anti-Iran policy in high seas harms Europeans: LA Times
- Iran, China confer on Syria
- Iran, Finland share views on Persian Gulf dialogue forum: Zarif
- Iran warns US against seizure of oil tanker
- Iraq eager to benefit from Iranian Police’s experience
- Iran planning 3rd step to reduce nuclear commitments: Spokesman
- Leader grants clemency to over 1,000 Iranian inmates
- Registration for Arbaeen Pilgrimage to begin in Iran on Friday
- Iran, Iraq agree to reopen Khosravi border crossing
- Iran deplores suicide attack at Kabul wedding hall
- Iran to hold int'l hand-woven carpets expo
- Zarif meets with Iran-Kuwait Friendship Group members
- Adrian Darya oil tanker not under any sanctions, says Iran envoy
- ‘Iran to stay in nuclear deal as long as its interests are met’
- India envoy happy with positive trend of trade with Iran
- Iran’s annual export of white meat tops 2.5m tons: Minister
- Iranian scientist discovers new state of matter
- Iran, Japan diplomats discuss bilateral ties
- Iran, Ansarullah, European representatives Yemen developments
- ‘Iran to become self-sufficient in producing aircraft engines'
- US issues seizure warrant for Iranian supertanker 'Grace 1'
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- US faces humiliating defeat after Gibraltar releases Iranian tanker: Envoy
- Spokesman rejects claim on Iran’s commitment in exchange for tanker release
- Zarif reacts to release of Iranian tanker in Gibraltar
- Israel, UAE engaged in secret talks on Iran arranged by US: Report
- US threatens visa ban as Iranian-operated tanker sets to sail from Gibraltar
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- Gibraltar releases Iran-operated tanker despite US pressure
TEHRAN, May 16 - Rare Diseases Foundation Managing Director said the institute has found 299 disease in this type, which two in ten thousand suffer and provide services for around 3000 patients in the country.
TEHRAN, Young Journalists Club (YJC) - "Rare disease foundation of Iran was founded in 2008 by Dr. Ali Davoudian. This NGO helps rare patients, dedicated to some patients with low prevalence in medical statistical," said Dr. Hamid reza Edraki Managing Director at Rare Disease Institute of Iran (RADOIR) in an exclusive interview with Iran press.
"Two in ten thousand patients is the prevalence of rare disease according to medical references," he added.
"We have set up new high tech diagnostic tools for early diagnosis such as High Tesla MRI, High Tech CT Scan, 3D and 4D Doppler Ultrasound, Radiographic tools," he mentioned.
He continued: "There are around 3000 patients suffering from rare disease in Iran who are covered by the RADOIR foundation."
RADOIR foundation is a member of International Society for Neonatal Screening (ISNS), Cancer Epigenetics Society (CES), and also WHO.
Rare disease national day is February 1st.
Source: Iran Press
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